The Organisation for Anti-Convulsant Syndrome is a registered UK Charity founded to offer help and support to all families affected by the syndrome, giving as much information as possible in relation to other disabilities such as dyspraxia, autism, ADD & ADHD, hypotonia, dystonia and dystonic movements etc. Our main aim is to supply as much information as possible covering all aspects of Fetal Anti-Convulsant Syndrome (F.A.C.S) in the form of booklets and giving contact names and addresses, including phone numbers of other societies or support groups who can help.
All families are welcomed into the group with open arms, not only because we understand the problems your child may be suffering, but also because we understand the problems you as a parent are suffering too, tackling both the medical and educational professions.
Trying to prove to some doctors that your child has a Fetal Anti Convulsant syndrome may be the highest mountain of all, especially if your GP, neurologist or paediatrician does not believe it exists. Under these circumstances we at O.A.C.S are here to offer advice and support. We can give you as much information as possible on your child's problems and , if required , to point you in the right direction in the form of other support groups, social service benefits and special educational needs services. Fighting without a diagnosis is not easy and so we will do our best to help you through this, to reach a possible diagnosis if your child is a sufferer, if this is what you want. Our consultant advisor may be able to see your child to offer diagnosis and suggest a management plan.
O.A.C.S can also signpost or advise families who are fighting for benefits. We know and understand the problems and pressures put on parents when help is so drastically needed but the money is not available to have that help. We want to be able to support and advise parents as to which direction to take and whom it may be best to contact.
We also understand any parents, who in the past or at the moment may be feeling guilty because of their child's problems or disabilities. We have all taken that road at some time or another. Believing that because you are the mother with epilepsy who took the medications it is your fault your child or children are like they are.
STOP!! Ask yourself, is it your fault that you have epilepsy? Did your GP or neurologist tell you about the problems your medication may cause? Did you know about the risk before you became pregnant?
These questions and many more should tell you its not your fault. The main problem is handling the difficulties you and your child may have, we are here to help you support you.